Transplant Resources
Since 1965, Northwestern Medicine Organ Transplant Center has performed more than 10,000 solid organ transplants. Our long history of better care means you can count on our team of experts at every step — before, during and after your transplant.
We know navigating a transplant can be stressful. We are committed to providing you and your loved ones with the resources you need to stay informed. This includes patient education materials, support groups and more.
- General Transplant Resources
- Kidney Transplant Resources
- Liver Transplant Resources
- Living Donor Resources
- Pancreas and Islet Cell Transplant Resources
- Northwestern Medicine African American Transplant Access Program Resources
- Northwestern Medicine Hispanic Transplant Program Resources
Downloads
NM.org
External Websites
- Coalition on Donation : This organization promotes and provides education about organ donation.
- Gift of Hope Organ and Tissue Donor Network : This nonprofit works with hospitals and donor families in the northern three‐fourths of Illinois and northwest Indiana. It focuses on recovery of organs and tissue for medical transplantation in the service area, as well as for professional and public education on organ and tissue donation.
- MedlinePlus : This is a trusted source that covers all aspects of organ donation and provides easy access to medical journal articles, extensive information about drugs, an illustrated medical encyclopedia, interactive patient tutorials, and the latest health news.
- National Organ and Tissue Donation Initiative : The U.S. Department of Health and Human Services is building a national community of organ sharing to ease the critical shortage of organ and tissue donors.
- Organ Procurement and Transplantation Network (OPTN) : OPTN is a unique public‐private partnership that links all of the professionals involved in the donation and transplantation system. Its goals are to increase the supply of donated organs available for transplantation and the effectiveness and efficiency of the United Network for Organ Sharing (UNOS).
- Transplant Living : This is the United Network for Organ Sharing patient education site for all transplant patients.
- Transplant Village: Giving Back to Northwestern Medicine : Transplant Village is a community of organ recipients, donors and family members who have had their lives touched and changed by the Northwestern Medicine Organ Transplant Center. With efforts managed by the Northwestern Medicine Transplant Advisory Council, this group has come together to create a network of resources and support and to raise funds for research and patient care at our affiliated hospitals.
- TransWeb : TransWeb’s mission is to offer information about donation and transplantation to the general public. It promotes organ donation and provides transplant families with information specifically about transplant issues.
- United Network for Organ Sharing (UNOS) : Through the UNOS Organ Center, organ donors are matched to waiting recipients 24 hours a day, 365 days a year. Through its policies, UNOS ensures that all patients have a fair chance at receiving the organ they need—regardless of age, sex, race, lifestyle, religion, or financial or social status. UNOS members include every transplant program, organ procurement organization, and tissue typing laboratory in the United States.
- U.S. Transplant—Scientific Registry of Transplant Recipients (SRTR) : The SRTR supports the ongoing evaluation of the scientific and clinical status of solid organ transplantation in the United States.
Support Groups
Downloads
External Websites
- American Association of Kidney Patients (AAKP) : AAKP helps kidney patients and their families manage the emotional and social impact of kidney disease.
- American Kidney Fund : This fund provides direct financial assistance to kidney patients in need and education for those with and at risk for kidney disease.
- Atlas of Diseases of the Kidney : The online edition from ISN Informatics Commission and NKF Cyber‐Nephrology provides information on kidney disease, treatment and research, including books and PowerPoint presentations.
- Home Dialysis Central : Home Dialysis Central educates kidney patients about home dialysis.
- Kidney School : This interactive, web‐based learning program is designed to help people learn about kidney disease and its treatments, so they can take a more active role in their care.
- Life Options : This program of research, research‐based education, and outreach helps people live long and well with kidney disease.
- National Institute of Diabetes and Digestive and Kidney Diseases : Part of the National Institutes of Health, this organization is involved in kidney disease research and treatment options.
- National Kidney Foundation
- Nephron Information Center : This site includes information and educational links about kidney disease.
- Polycystic Kidney Disease Foundation (PKD) : PKD Foundation’s mission is to promote research to find a cure for PKD, and improve the care and treatment of those it affects.
- The Renal Network
- Worldwide Kidney Disease Community : This online resource brings together people with kidney disease, in a worldwide community dedicated to improving patient quality of life.
External Websites
- American Association for the Study of Liver Diseases (AASLD) : AASLD promotes liver health, awareness and resources for the patient and also announces research awards.
- American Liver Foundation (ALF) : The ALF offers an array of information about liver disease and transplantation, as well as clinical trials and chapter locations and specifics. The Illinois chapter features an online support group and message board.
Downloads
NM.org Questionnaires
External Websites
- American Lung Association : This organization is working to save lives by improving lung health and preventing lung disease through research, education and advocacy.
- The American Diabetes Association (ADA) : The nation’s leading nonprofit health organization providing diabetes research, information and advocacy.
- dLife Diabetes Resources : This comprehensive site provides diabetics with disease education, resources, research and a television show about diabetes on CNBC called dLifeTV.
- Juvenile Diabetes Research Foundation (JDRF) : This nonprofit health organization provides diabetes research, information, education and advocacy for type 1 juvenile onset diabetes.
- National Diabetes Information Clearing House (DNIC) : This is the part of the National Institute of Health involved in diabetic research and treatment options.
- National Heart, Lung and Blood Institute (NHLBI) : This division of the National Institutes of Health offers information about the lung transplantation process.